Survivors

One of the hardest things about being a maternal near-miss survivor is that few people around you truly understand what it is like.  Yes, you may have the best support system in the world, but facing your own mortality as a young mother has a very unique set of challenges associated with it that few can relate to.  For most women, the aftermath of a near-miss is a very lonely and grief filled experience... but you are not alone!

Most Maternal Near-Miss Survivors have significant informational and emotional needs following discharge.  Many spend innumerable hours searching for basic support online.  I know because I was one of them.  Finding a space to process and connect with other survivors is a healing recovery experience for many.  This is not an exhaustive list of support organizations, but it will help you get started.  No mother left behind.  (*this list was started in the Maternal Near-Miss Survivors Support Group)

Accreta/Increta/Percreta

Hope for Accreta

March of Dimes- Accreta, Increta, Percreta

National Accreta Foundation

Amniotic Fluid Embolism

Amniotic Fluid Embolism Foundation

Blood Clots

March of Dimes- Blood Clots, DVT, PE

National Blood Clot Alliance

The Shane Foundation

Women and Blood Clots

Heart Failure (pregnancy induced)

My Heart Sisters

Save The Mommies

Grief and Loss

AFE Foundation: Guide For Grieving Families
The Compassionate Friend

Liz Logelin Foundation

March of Dimes- Grief and Loss

March of Dimes- Stillbirth

National Share (Pregnancy and Infant Loss Support)
Soaring Spirits (loss of partner)
What's Your Grief: Widowed Dads A Resource Round-up
What's Your Grief: Parenting While Grieving

Online Peer Led Support Groups

Birth Trauma Support

Hope For Accreta Hysterectomy due to Childbirth

Maternal Near-Miss Survivors

One and Done Not By Choice

Postpartum Hemorrhage and Hysterectomy

Postpartum Hemorrhage Survivors

Surviving a Silent Killer, Let’s Talk Babies (PE/DVT)

Postpartum Hemorrhage

Life After Postpartum Hemorrhage

March of Dimes- Postpartum Hemorrhage

Postpartum Mental Health

Cherished Mom
March of Dimes- Postpartum Mental Health

Postpartum Support International

Postpartum PTSD

Preeclampsia/HELLP Syndrome

March of Dimes- Pre-eclampsia/ HELLP

Pre-eclampsia Foundation

Sepsis

Sepsis Alliance

Sheehan’s Syndrome

Hypogal

Society for Endocrinology- Sheehan's

Trauma

After the ICU

After Trauma

Medically Induced Trauma Support Services

Prevention and treatment of traumatic childbirth (PATTCh)

Put A Face On Maternal Health

Solace for Mothers

Trauma and Sleep

Unexpected Project

We are Mother Good

Resources for Fathers

AFE Foundation: Guide For Grieving Families
Boot Camp For Dads 
Grief Healing: For Widows, Widowers and Single Parents
The Liz Logelin Foundation 

Postpartum Dads

Postpartum Men

Postpartum Support International- Dads
Soaring Spirits (loss of partner)
What's Your Grief: Widowed Dads A Resource Round-up
What's Your Grief: Parenting While Grieving


Advocacy, Awareness and General New Parent Support
Alliance for Innovation on Maternal Health

Black Mamas Matter Alliance

California Maternal Quality Care Collaborative
Cesarean Rates

Every Mother Counts

Faces of Postpartum

Heroes for Moms
Improving Birth

International Cesarean Awareness Network (ICan)

March of Dimes- Advocacy and Awareness

March for Moms

Merck for Mothers

MoMMAs Voices

Moms Rising
National Perinatal Association

Nobody Told Me About That- The First Six Weeks
Institute for Perinatal Quality Improvement

The Tara Hansen Foundation

The White Ribbon Alliance

2020 Mom

4 Kira 4 Moms

I will be adding more resources to this page as I come across them.  If you know of any groups or organizations that should be added, please email me at Casey@heroesformoms.com.